CADIZ – Thirteen-year-old Hanna Blake of Cadiz pictured left, was born with a rare genetic disease known as Dystrophic Epidermolysis Bullosa, a condition in which the skin is so fragile the slightest friction could cause severe skin tears and blistering both inside and outside the body, and longtime family friend Abby Roberts, also of Cadiz, wanted to do something to help.
Roberts is holding a fundraising sale as an independent consultant for Scentsy through Feb. 27 for EB awareness. “I’m giving all of my earnings from this order to Debra [Dystrophic Epidermolysis Bullosa Researchers of America],” she added, saying the organization is also promoting the sale on its site, Debra.org.
Hanna undergoes a daily regimen of popping, draining and cleaning blisters to prevent infection, applying special salve and bandaging her body. She said a bandage change alone could take up to three hours. A thick grease-type substance must be applied to Hanna’s lips constantly because they can easily dry and crack. She soaks in a special therapeutic tub and requires a dosage of pain medication when necessary. Even her two-year-old sister, Hallie, tries to lend a hand. A nurse visits once a week to check Hanna’s vitals and wounds.
Customers can go online to www.AbbyRoberts. Scentsy.us and click on the EB fundraiser to make a purchase or call Roberts at 740-491-0396.
BOWERSTON – A benefit dinner and auction to raise money for a seizure alert dog to improve the life of little Elliana Balder will be held Sunday, March 3, 2013, at Bowerston’s Western Grille, located at 216 W. Main St., with overflow seating at the fire hall next door. Dinner will be served from 4 to 7 p.m. Tickets are $10 each, and half of the ticket proceeds will go directly to Elliana’s fund at 4 Paws for Ability, the non-profit organization that will provide the trained service dog.
The auction following the dinner will begin at 7 p.m. Wallick Auctions have donated their time for the event. In addition to the auction, five vendors will be selling items with a portion of the proceedings going toward 4 Paws for Ability. Also offered for sale will be luminaria in honor of children and adults with special needs.
The auction itself will feature a wide selection of donated items, including an autographed Troy Polamalu picture, autographed Carole King CD’s, tickets to Dollywood, Akron Aeros tickets, an autographed Cleveland Browns football, tickets to the Pittsburgh Pirates, a diamond and ruby bracelet, a picnic table, multiple handmade baby items, handmade wreaths, and many other items.
“Elliana has been having seizures since she was five months old,” explained Balder. “She was diagnosed with localization related focal and partial complex seizures and epileptic syndrome. Currently she takes medication to control her seizures but continues to experience breakthrough seizures at night. A seizure alert dog could change Ellie’s life forever by giving her back the freedoms we often take for granted such as sleeping in our own bed or going to a friend’s house to play. It would also offer her a sense of security and stability during the numerous tests that go along with a diagnosis of epilepsy.”
Tickets for the dinner and auction are available for purchase at Bakers IGA in Scio, or you can order a ticket for the event by e-mailing firstname.lastname@example.org. Tickets will also be available at the door. If you would like to learn more about Ellie’s journey, visit www.facebook.com/elliesstory.
Find out more about the plight of these two young girls in this weeks print edition of the Harrison News-Herald.